And for this, I can’t possibly thank you enough. Because of proper diagnosis and treatment, my daughter is back to school & is finishing her senior year of high school AT SCHOOL! MEDICAL UNIVERSITY OF SOUTH CAROLINA - CHARLESTON, SC AUGUST 9, 2018 Dr. James Glenn, cardiologist at Medical University of South Carolina, discusses the disorders associated with both the organ systems involving neurology and cardiology-- sometimes referred to as "neurocardiology".These disorders are common in individuals with Ehlers-Danlos syndrome and other connective tissue … I wanted to thank Dr. Blitshteyn for making the diagnosis of Sjogren’s Syndrome with my history and the symptoms that I presented. Dr. B, you are the best!” – Anonymous, “Dr Blitshteyn saved my life by pointing me in this direction. Dysautonomia is an umbrella term for multiple conditions that cause dysfunction of the autonomic nervous system. may be involved in diagnosis, treatment or management Please see our Terms of Use. God bless!” – Tanya Maples, “I had a consult with Dr. Blitshteyn. Most said they couldn’t help and referred us on to other specialists. She is amazing. Thank you again for all your help. We have seen countless specialists. Copyright 2017 Dysautonomia Clinic. POTSibilities Parents provides a place for parents of children with dysautonomia to connect. Compassionate and knowledgeable. So thankful for her. I believe in miracles and God definitely worked one in my life with Dr. Blistheyn. No more canes or wheelchairs! Mental Health and Chronic Illness Service Animals Work and Disability Technology and Education Physicians . Medical Articles: Kenneth J. Bergmann, M.D. And this evening, I received a full report and treatment plan via e-mail to share with my regular doctor (and send to that nasty cardiologist!) !” – Maryanne, “We are so excited to let you know that my daughter is walking again! South Carolina - Return to Index. Symptom Search You are a true blessing and I am so thankful for what you have done for me so far… Thanks for the help, and looking forward to you as my Dr.” – anonymous, “After a very brief wait, I finally had my much-anticipated telephone consultation with Dr. Svetlana Blitshteyn. Dysautonomia International is grateful for the wisdom and guidance provided by our volunteer Medical Advisory Board. I strongly urge anyone suffering with POTS or who has a child with POTS to contact her and let her share her wisdom with you and your physicians. Share your misdiagnosis story. I can’t thank Dr. B enough! During the holidays it can be a difficult time for many reasons, especially when we have this disorder, but I wanted to send some encouragement that it can get better, I am a testimony that it can! Department of Neurology Medical University of South Carolina 96 Jonathan Lucas Street, Suite 307 Charleston, SC 29425 USA Phone: 843-792-3221 Fax: 843-792-8626 Multiple System Atrophy Parkinson’s Disease and Related Dysautonomia. She was very thorough and focused while reviewing and questioning me in depth about my medical history and symptoms. Please help. Thank you for your incredible expertise! Dysautonomia disorders, diagnostics & Info POTS Video: Living with POTS Information guides for family and friends NCS PAF MSA EDS Find a physician Newsletter - Dysautonomia News Link Directory Studies - Open Recruitment Research & News All of Us Research Program - NIH Living with Dysautonomia I wanted to give up, but not anymore. You diagnosed her with Dysautonomia about a year ago and because of your recommendations we were able to access care by a local electrophysiologist and an immunologist. Even though I already saw some other top specialists, it was super worthwhile to talk to her also. !” – Tammi C, “I just wanted to drop you an email thanking you for your phone consult with me. See all the Boards. I’m feeling better than I have in years after just several days of treatment. Newsletter - Dysautonomia News Link Directory Studies - Open Recruitment Research & News All of Us Research Program - NIH Living with Dysautonomia . After one consult and a follow-up with our local doctor, my daughter went from having episodes of painful pre-syncope 4-5 times/day and screaming in pain on the couch to being able to stand for several hours, working at a craft fair for our little home-based business! After our second appointment, she reassured me I was doing better and was very pleased. What is the best treatment for my condition. Our entire family knows that this would not have happened without Dr. Blitshteyn. Her brain fog is gone and she’s so grateful to be active in life again. Author and POTS activist Jodi Epstein Rhum has a list of autonomic doctors on her website. It seems to be a gift you have.” – Sue M, “The phone consultations are life-saving.” – Mary W, “I have gotten more help from one-hour phone consult with Dr. Blitshteyn than from staying an entire week at Mayo Clinic” – Anonymous, “She is excellent. Blitshteyn, I can’t thank you enough for all you have done so far for me, it has taken me 4 years to get to this point, and countless dr appointments with no answers, or a partial answer that led me on another search. If anyone is suffering out there, this is an amazing resource.” – Mary W, “I cannot thank you enough for the compassion and the help all throughout this ordeal. I would highly encourage both patients and providers alike to reach out to her! She could not leave the house without a wheelchair & used a cane indoors. She is the greatest! See full list below. Without the understanding of a doctor who truly understands these conditions people will suffer in ways that few will understand. I keep coming back to you with these hard cases. “After 10 years of suffering with POTS and losing the doctor who was treating me almost 3 years ago, I came across Dr. Blitshteyn. Although I was relieved that after going to 9 doctors the last one FINALLY find out what was wrong with me and why I was feeling so horrible. That it was not all in my head or anxiety, and it gives me hope knowing that it could be treated and could be controlled. She is one of few doctors who realize how much the playing field of what we thought we knew about Lyme is changing. Don’t get me wrong I still have my bad days and meds are still being adjusted, I still have some more tests I have to take, but I have not felt this good in a year. It was founded by Dysautonomia International Board Member Jodi Epstein Rhum. We did a phone consult with Dr. Blitshteyn and she recommended adding another medication. googletag.cmd.push(function(){googletag.display('dc-title-4');}); We are so blessed to know her!” – Anonymous, “She’s the best, I’m back in college because of her help and patience.” – Jamie W, “I highly recommend a phone consult with Dr. Blitshteyn at Dysautonomia Clinic. How to Find a Doctor With Experience in Autonomic Disorders You can use the regional listing below, or the Interactive Global Dysautonomia Map to find a physician. Without the consult with Dr. Blitshteyn, none of this would have happened” – Maryanne T. “We are VERY thankful for Dr. Blitshteyn. Ask your doctor to recommend what other types of doctors, physicians, medical specialists, She was on homebound from school for three years. I have been dealing with undiagnosed POTS for over 20 years, I have seen numerous doctors and can’t even imagine how much money I have spent. Information provided on this site is for informational purposes only; it is not intended as a substitute for advice from your own medical team. God bless all of you!” – Tanya M, “I have to say – Dr. Blitshteyn has been a real Godsend to me. Now she feels “like normal!” I love seeing her get her life back! She stated that based on all of the clinical evidence, I have POTS and neurocardiogenic syncope. Tell us your medical story. I live in Western New York. Your notes reflect a rare degree of thoroughness and breadth of experience. I can’t thank you enough for being educated about the current situation. But for the most part all of her major debilitating symptoms have been put to rest. After having spoken with Dr. Blitshteyn, my journey of the last 3 years has landed in the right place. The following types of doctors or medical specialists She gets it. I know I will never be well, or to the point of who I use to be, but to at least know what I have and know the feelings I have are real and I am not crazy are a relief in itself. Clearly, she is incredibly knowledgeable about Dysautonomia and POTS. I highly recommend her to anyone suffering from P.O.T.S. It does really work. Misdiagnosis Center Call Dr. Blitshteyn and look for a hope at the end of a dark tunnel. Don’t suffer. I was very impressed with your work as a medical legal consultant. Additionally, she has friends again, has obtained her driver’s permit, and is actively engaged in life. Doctors for Dysautonomia: This section presents information about some of the possible medical professionals that might be involved with Dysautonomia. You have been a lifeline to us both!” – WW, “I was diagnosed with Dysautonomia in July of this year. Your report on autoimmune encephalitis was well-written and well-supported. NYU Langone’s Dysautonomia Center is dedicated to improving the lives of people with autonomic disorders, offering a range of treatment options. I would recommend her to anybody suffering with autonomic dysfunction.” – Jill Z, “After only 3 phone consultations, my 15 year old son, who has POTS and had been suffering with severe, debilitating migraines almost daily for a year and was homebound, is back at school part-time and is slowly getting his life back. or other medical professionals should be part of the team for your medical issues. Her expertise has helped us get back on the road to our normal lives. Kenneth J. Bergmann, M.D. Dr Blitshteyn is treating my daughter Katie. I have the utmost respect for her and her staff. All locations are open for appointments and procedures, including COVID-19 testing . No doctor in my hometown could figure out what was wrong with me. I had read glowing reviews about her on the web site DINET. A few weeks ago, our son was accepted to the university of his choice for the Fall of 2015. You are a godsend, and I know that you have a special place in heaven for healing our children!” – VC, “She is an absolute genius! These highly accomplished researchers and clinicians keep us updated on the latest developments in autonomic research, diagnostic guidelines and treatment recommendations. THANK YOU SO MUCH for believing that my issues were real and helping me through all of this. “I was diagnosed with Dysautonomia in July of this year.